Testimonials

Behind every SLC6A1-related neurodevelopmental disorder (SLC6A1-NDD) diagnosis is a person, a family, and a unique story of challenges and hope.

​

SLC6A1-NDD affects each individual differently, with symptoms and severity varying from person to person. Through the following testimonies, families offer a glimpse into what life with the condition can look like and how it may affect everyday life.​ Some of the videos may be difficult to watch, particularly for families whose loved ones have just recently been diagnosed.

​

Every story strengthens our determination to work together towards a future in which effective treatments are available to everyone affected by SLC6A1-NDD.